Tollestrup ForumCategory: QuestionsCharcot Marie Tooth
Michele De Sandis asked 2 months ago

Hi Doctor,
I’m suffering of Charcot Marie Tooth.
All my body is in pain. Major Pain is in arms and legs.
Could you help me in some way?
 
Thansk In advance.

Dr. Tollestrup replied 2 months ago

Hi Michele. Generally speaking, CMT does not respond well to the type of surgery that I do. As you know, there are different forms of CMT based on the specific genetic mutation which cause degeneration of the insulating layer (myelin sheath) around the nerve fibers (axons). In certain situations, a nerve decompression surgery can temporarily improve something like a foot drop but function eventually deteriorates again as the underlying disease process progresses.